Guess who has celiac?

[lunabee34]

It is I, the celiac-haver.

*sigh*

I'm actually much less upset about this than I might be since I've had about eight months to get used to the idea that I probably have this disease. I've already moved through denial and anger and have settled into acceptance.

I've also had some complications since the endoscopy that have taken up all my anxiety time. I've had tightness in my chest and trouble breathing intermittently that culminated in me thinking I was dying of a heart attack pretty much all day yesterday. So I moved my follow up for the endo to today and then spent the rest of the afternoon after being told that I do indeed have celiac getting an EKG and a chest XRAY.

So, waiting on those results. The doc says this may be a very rare reaction to the anesthesia. IDK I had a heart murmur as a little kid, and this feels a lot like that. I remember feeling like I couldn't breathe, not as if my airway was obstructed, but as if the quality of each breath I took was terrible. I would make myself yawn every 30 to 90 seconds so that I could get a deep, satisfying breath. That's how I feel now. It sucks. It is making me super tired and hard to exert myself. I have to believe that if either of those tests had showed anything worthy of a hospital admit, they'd have contacted me already. *sigh*

Anyway. I am now done whining.

Comments

[gloss]

You're not whining (and even if you were, that would be MORE than okay). I'm sorry this stressful stuff's going down for you. ♥

[lunabee34]

*hugs*

I'm feeling a lot better today.

[umadoshi]

Wow, that's quite the day. Ugh.

It is making me super tired and hard to exert myself.

That is wretched. I hope the test results come back quickly with something helpful. *hugs*

And I'm sorry to hear about the celiac diagnosis. :(

*more hugs*

[lunabee34]

*hugs*

I'm feeling a lot better today.

[china_shop]

*hugs and hugs*

[lunabee34]

*tackle hugs*

[sallymn]

That's not whining (trust me, I can REALLY show you whining when I want to...) and even if it was, you have every right to whine, and moan, and bitch. I'm so sorry that you've been hit with this... makes my poor little (if sometimes painful) issues seem so trivial.

{hugs}

[lunabee34]

*hugs hugs*

I am feeling much better today.

And no one's problems are trivial. *hugs*

[jackandahat]

Yep - if they thought this was dangerous, rather than "just" painful or stressful, they would have you straight into hospital.

*hugs* Hope having an answer makes things easier to manage at least.

[lunabee34]

*nods*

I wish they would get back to me in a timely fashion, but that they haven't probably means they found nothing. LOL

I do feel a lot better now.

[kore]

You are seriously not whiny! I've known people who THINK they have celiac and didn't and whined endlessly. You have not done that.

I know just how that not-enough-air feeling feels, blech.

[lunabee34]

It seriously blows. Boo and also hiss, lungs.

I feel much better today, though.

[monanotlisa]

Oh dear. Much love to you!

Averse reactions from anesthesia sound possible (we are talking central nervous system), but it also sounds weirdly familiar to me...I love running so much because after extreme exertion that feeling of not being able to breathe *well* is gone, and for the first time I get the phrase, "easy as breathing." I've always blamed allergies, but the standard allergy tests come back clean. I've now wondered whether this is an anxiety thing -- definitely breathing is easier on certain of my prescription meds for anxiety. Feel free to ignore my rambling, though; could be a complete coincidence.

(If you don't mind sharing, how was the damage to your colon?)

[lunabee34]

*hugs*

I feel much better now. I think it has to be the anesthesia; they haven't called me with the results yet, and I think if I actually had been having a four day heart attach they would have called me by now. LOL I don't think it was caused by anxiety, but I think anxiety definitely exacerbated it. The longer it went on, the more anxious I got and that made everything worse. I'm still feeling it a little, but I'm not freaked out about it anymore, and it's much more manageable.

As far as the celiac goes, no damage was visible to the eye, but the biopsies showed whatever it is that indicates celiac. So minimal damage. If I go gluten free now, I should heal up well and good soon and not have to worry about accidentally encountering trace amounts somewhere or giving up my lipstick like my poor mom has had to.

[monanotlisa]

Glad you are feeling better finally!

And also: only microscopic damage is great! Like you say, you should heal up nicely now. And seriously, there is so much tasty tasty food that's gf!

Sent from my iPhone

[lunabee34]

*nods nods*

When I get back from my vacation to NY on Friday, we're going through all our food, and getting rid of all our plastic and wood dishes, and then re-stocking everything.

[zulu]

*hugs*

[lunabee34]

*hugs*

I am feeling better now.

[musyc]

Oh, uuuugggghhhh. So much sympathy for you. :/

[lunabee34]

*hugs*

I am feeling much better now.

[tamoline]

*Hugs* and best wishes. Let us know how things go.

[lunabee34]

*hugs*

I am feeling better now.

[king_touchy]

It sucks you have go go through this. Venting isn't whining, and sometimes it helps a person feel better.

*hug*

[lunabee34]

*hugs*

I am feeling better now.

[princessofgeeks]

HUGS

[lunabee34]

*hugs*

I am feeling better now.

[wendelah1]

Surely they would have called.

I'm sorry about the diagnosis but at least it was caught early. I don't know about where you live but there are gluten-free alternatives on the shelves right next to their glutinous (?) counterparts.

I have a book of recipes for gluten-free baking. I'd be happy to send it to you.

[lunabee34]

I finally heard from them and neither test found anything, thank goodness.

You are so sweet, but fortunately I don't do any baking or really eat much sweets as it is, so that's not the part I'll be missing. :)

Watching mom go through her diagnosis has been really helpful in dealing with mine. I've got a fairly good handle on what I can and can't eat. It'll just be tedious shopping for the next little while until I get stuff memorized.