lunabee34: (cat's moon by ponders_life)
1. Ha ha! I am vindicated.

So, my family will sometimes say stob for a small stump or a stick sticking up out of the ground or a broken off piece of fencing. Josh has insisted repeatedly over the years that this is not a real word and just something weird my family says. However, I'm reading one of Rick Bragg's memoirs and he uses the word stob, which prompted me to look it up in the dictionary and confirm it is indeed a real word and not just another example of the ways in which I belong to a bunch of hicks. I've always assumed it's a bastardization of the word stave.

2. Fiona is sick again. She has the flu now, and the pediatrician had us go to the hospital so she could get a chest x-ray (I guess their machine is better than the one at the pediatrician's, IDK). We haven't heard back about the results of the x-ray, but I really hope she doesn't have pneumonia again. I just don't understand why she keeps getting these respiratory things.

3. Dylan has a weird lump on her shoulder that we think might be lupus-related. The rheumatologist is sending her to an orthopedist to look at it (which makes no sense to me), so hopefully we'll know more about it soon.

4. I have to go to the dentist today. I've been putting it off as long as I can because I am a ding ding, but I hate going to the dentist so much. :(

5. We watched The Wild Robot on Netflix. Fiona loves the book(s?), and she was satisfied with the movie as an adaptation even though it made some minor changes to character and plot. All three of us ended up crying multiple times throughout; Josh popped into the living room at one point and turned heel and left again immediately. LOL Definitely worth a watch.
lunabee34: (Default)
1. Dylan has been diagnosed with lupus and given medication. When we got done with the appointment, I sat in the car and cried. It's been so long with no one helping us that I had started to despair that it would ever happen. I'm scared, of course; I don't want my child to have lupus. But this means they can now take medicine to make them feel better, and they can get accommodations at school if they need to because they have a formal diagnosis.

I am also incandescently angry at the first rheumatologist we saw. Dylan's labs are essentially THE SAME as when we saw that doc; she just didn't think Dylan was SICK ENOUGH to do anything about. They could have been getting help all this time.

In the same vein, I've got a routine appointment with my PCP later this summer; I'm going to have her run the same labs she did on Dylan that led to the referral, and if my labs are at similar levels, I'm going to get a referral to the same rheumatologist. I have always firmly believed that Dylan and I have the same issue, just that they started on the path much earlier and much more severely. I couldn't get that awful rheumatologist to take me seriously, but clearly this one will.

I haven't said anything to my parents yet. I guess I will next time we talk, but I don't want to initiate contact with them. I know mom's going to be hurt and sad that I didn't immediately tell her, but I don't want to talk to them.

2. spoilers for all of Dragon Prince )

All in all, deeply enjoyable and highly recommended.
lunabee34: (stranger things: steve n dustin by misbe)
1. The move began today. Our friend Peter, a former colleague, has a trailer and is helping Josh move Tom. They just arrived at the TN apartment an hour ago. It doesn't feel real yet, but it will.

2. I think I mentioned that I had my antibodies checked and that I had gotten those lab results in; they are normal, so I'm not being accidentally glutened, yay! I also had a bone density scan, and today I found out I've got normal bone density, so no osteopenia/porosis.

3. Steddie rec:

Good Ol' Fashioned Sexuality Crisis during the Apocalypse by words_reign_here
Stranger Things
Steve/Eddie + canon pairings
OMG so wonderful. Stories like this are my catnip.

4. Your latest trivia re: Strangers Things fanfic:

I'm at page 68 of fanfic sorted by kudos, and I've only encountered three reader fics (which completely surprises me; I thought they'd be more prevalent).

Almost every fic on these 68 pages is Steve/Eddie. There's some Steve/Billy, some Mike/Will, some Nancy/Robin, and a fair amount of gen, but it's 85% Steve/Eddie, which really truly surprises me. Not complaining; just surprised.

Lots of Eddie is a vampire fic.

5. Plot Bunny:

There's a fair amount of Eddie is a ghost fic, but I would love to see a story modeled on that old YA book, The Ghosts of Departure Point, where both Eddie and Steve are ghosts. I keep being tempted to write it, but I'm not going to. I'd have to watch the series again because at this point I have no idea what's ubiquitous fanon and what actually happened in the show. LOL
lunabee34: (yuletide: yuletide is love by liviapenn)
1. Yuletide is did! I am so relieved.

2. Colonoscopy went well with good results: no polyps. I also got the results of my antibody test, and they were normal. This means that I am not currently being accidentally glutened. Tom has been much more careful since the last big blow up, and I have been hiding my lunch meat, so clearly that's working.

3. Tumblr has come to the middle school. Fiona started telling me yesterday about how two of her friends are pan and one of them is aroace and several of them are therians. One of her therian friends identifies with an OC animatronic she made up for the Five Nights at Freddy's universe. Y'all, I had no words.

4. Moar Christmas stuff! I got a card from [personal profile] troisoiseaux and a wonderful package of goodies from [personal profile] misbegotten. Thank you both so much!

5. There is no five.
lunabee34: (Default)
So, I went yesterday to have the initial consult for my first colonoscopy, and lo and behold, it's happening tomorrow. I mean, medical stuff never goes that fast. LOL So, I'm spending today in the misery of liquids only + prep. Not looking forward to being NPO until the afternoon tomorrow either. But I'm glad to be getting it over with.

Also, the gastro was appalled that I've had no management of my celiac since diagnosis so I'm getting a bone density scan in January, and he tested my antibody levels. If those are elevated, it means I'm getting glutened even if I don't feel bad. Of course, if they do come back elevated, I suspect a certain new housemate is responsible for that.

But the house sale is completely over and the money is in the bank! OMG! So now the relocation may begin.

+ / -

Sep. 24th, 2024 06:10 am
lunabee34: (Default)
+ We have survived the Great Hargray Internet Outage of 2024. If you were in GA, SC, FL, or AL with Hargray as your internet provider, you were out of internet most of yesterday. Fortunately, it was fixed before bedtime last night.

- I have discovered one of the reasons why I have been having more flare-ups, migraines, and fatigue over the last two months. My FIL has been glutening me--not enough to make me puke but enough to evoke an autoimmune response that has me lowkey feeling like shit all the time. Hurray! He clearly doesn't believe it's something he should be careful about; maybe he even thinks I'm just being precious about it. If an 11 year old can keep me safe, then he is certainly capable. But he doesn't care to. I realized this when I saw him get a piece of pizza and then use the same hand to get the ice scooper; I called him out on it, and he was a jackass about it. Which is another problem. You can't explain the rules to him or call him out on anything without him being a jackass. Josh also gave away his beautiful, expensive, bespoke butcher block cutting board that he got for Christmas because FIL got crumbs all over it. I cried and cried over that one and felt terribly guilty.

Fortunately, Josh is 100% on my side. He reamed his father out and told him he could never speak to me like that again and that he had to follow the rules, etc. To FIL's credit, he apologized to me the next day, and in front of Fiona, but it wasn't long before I saw him about to cross-contaminate the lunch meat again. This time when I told him to get his lunch meat and cheese before his bread, he just did it instead of clapping back at me. But it's clear that when left to his own devices, he just does whatever.

So, I now have my own little stash of lunch meat hidden in the depths of the fridge where he can't find it, and I feel much better physically if not mentally.

+ I just finished rereading the Parasol Protectorate series, which is delightful fun. I wish I had thought to nominate it for Yuletide, but I reread the whole series in a whirlwind last week to prepare for a reading group this week. Steampunk + all the slash, femslash, and het you could want = great fun.

PP book reviews )

- Objectively, living with FIL is fine. But subjectively, it is really starting to chafe. He is either sitting silently in his chair and completely disinterested in making conversation to the point that he doesn't even look at people when they come in the room (he's always been like this) or in his bedroom napping. It's hard to explain how tiresome it is to be in the company of someone like that day after day after day. And this part makes me feel like a shitheel, but what makes it worse is that he's never expressed a single bit of gratitude, not said thank you one time, for us completely upending our lives and bringing him here. :(
lunabee34: (Default)
1. Everything is going really well with FIL. His transition into the household has been seamless, and his health is good. I was really worried that him living with us was going to be a negative experience in a lot of ways, but that has not been the case at all!

2. Deep, deep thanks to [personal profile] executrix for helping us navigate all the elder care rigamarole. We have lawyerified, and the plans are in motion. I think MIL will very soon be in a facility.

3. The Cushing's diagnosis has fallen through; despite testing positive on 3 out of 4 of the diagnostic tests, I didn't test positive enough. Fuck all them fuckers, she says cheerfully. May they and someone they love, preferably a child, develop simultaneous chronic illnesses no one can diagnosis and which everyone vaguely acts like they're making up.

4. The semester starts tomorrow. I'm not ready to go back.
lunabee34: (disney hair by phchiu)
1. Thank you all for your well wishes re: the med change. I am now completely off the Topamax and on the final dosage level of Depakote. I can tell it's going to be a tradeoff. I hurt a lot more on the Depakote, and my sleep is disordered; I think the Topamax was zonking me out at night (the time of day when I took it) and helping me sleep more soundly. Also having lots and lots of bizarre dreams. But this med being much less soporific is also a good thing; I am not as tired during the day. And while it's hard to tell from inside the experience because it's happening gradually, I think the brain fog is lifting. I think I feel more clear-headed. I am still in the adjustment period, so I have hope that my sleep will eventually even out. Now I just have to cross my fingers that my liver and kidneys aren't being affected when I get my blood drawn at the end of this month, and I'll be good to go.

2. Poor Fiona. She's at the very beginning of puberty, and it is hitting her so hard. She is very emotional and clingy. She wants to cuddle with me and lay all over me and plaster herself to me like a barnacle. It's very, very sweet, and she's driving me kind of bonkers. What a terrible problem to have, right? That my child wants to snuggle with me too much. LOL Mostly, it just hurts after awhile because I have skin sensitivity/pain; sometimes the seams of my clothes hurt me or the weight of one leg touching another. Oh, well. I shall survive this love fest. *g*

3. Update on curly hair journey: I am pretty satisfied with my routine at this moment. I continue to try new products, but I've figured out the basics that will work for me.

hair routine and products )

Tell me about your hair routine and favorite products--any hair texture welcome.
lunabee34: (Default)
1. cut for discussion of physical and mental health )

2. Josh is having surgery on the bottom of his foot on July 10. We thought he had a ganglion cyst, but after the whole X-Ray/MRI rigamarole, turns out he has a torn tendon that needs surgical repair. He'll have to stay completely off the foot for 3 weeks following the surgery. That is going to be interesting.

3. I have continued to receive incredibly generous birthday gifts. [personal profile] misbegotten sent me some Sharpie S-gel pens (so smooth!) and a book about living with chronic pain (review below!) and [personal profile] executrix sent me some more books and a collection of lip gloss.

I had a birthday party with my RL friends and received glorious stationery items and a gift card for books and a beautiful napkin holder I've been coveting for some time.

A dear fandom friend (if they wish to can identify themselves) sent me enough money to fill my Nurtec RX. Y'all, I cried and cried when I opened that card. I am surrounded by such kindness and generosity and love. I am so grateful, always.

4. so much reading, so eclectic )
lunabee34: (Default)
1. Well, I may be zen about the technological difficulties, but my anxiety is playing out as expected in other ways. LOL

So, I went to fill my Nurtec RX a couple weeks ago--this is my migraine rescue drug, not the one that works to prevent me from having them, but the one I take if I get a migraine despite the Topamax--and it was $500 after insurance! Naturally I did not fill it and put it on my calendar to call Blue Cross Blue Shield and be all WTF after I got my class up and running. I don't remember how many times I filled that RX last year, but if it had cost $500 each time, I think I'd have spent at least 2k on it, maybe more. The point of this drug is that you take it the second you feel like you might be getting a migraine, and perhaps you might "waste" a dose. I had to learn this the hard way when I first started taking it because I'd be like, "Well, maybe I'm not getting one. Let's just wait and see. I don't want to waste it." And then inevitably, when it was clear I actually was getting a migraine, it was too late for the drug to work, and I was stuck with a migraine for 3-4 days. Oh, yes. If I get a migraine, it lasts for 3-4 days, always.

I hate calling the insurance. I have spent so many hours of my life on the phone with the insurance, especially after that erroneous bill we got from the hospital when Fiona had pneumonia as a baby. It fills me with existential dread. So I haven't called them yet.

Two days ago, I felt like I might be getting a migraine, but I thought, "Maybe I'm tired. Let's just wait and see." AND GUESS WHAT? I GOT A MIGRAINE! I know that underlying this decision subconsciously was the thought that I only have a few Nurtec left and I don't want to waste them, and I could just kick myself because I feel miserable. :( At least today or tomorrow is the final day of this mess.

2. I got some early birthday presents! The candle I bought with the gift card [personal profile] spikedluv sent me arrived. It's the Savannah candle, and it smells divine. I also got this wallet in gunmetal grey from Josh. My old one is looking pretty shabby.

3. The AC guys put in half the new heat pump yesterday, the half that goes up in the attic. It is so wonderful having skilled tradespeople that can be trusted. They showed us the unit they took out, and it was all corroded and rusted and horrible. *shudders* I am really looking forward to having a lower energy bill.

hi hi

May. 17th, 2023 09:49 am
lunabee34: (Default)
1. Hello, friends! The semester is blessedly over. Through a combination of being so damn busy all the time, my ongoing physical health issues, and the resulting mental health issues from the latter, I managed to be in a position where I was grading up to literally the last second before grades were due.

I gave a final on the 9th; grades were due on the 11th. I was still completing tasks for Senate Chair and tasks for this conference I'm coordinating while doing all this. I had to get up at 5:00 on the 11th and grade for 7 hour straight so that I could turn in grades with literally three minutes to spare. Then I had an international Zoom meeting. Following that, I jumped in the tub long enough to scrape the horror off my body and drove for an hour to our main campus for graduation (where we graduated our first cohort of doctoral students OMG so exciting!!!!) and got home at 7:00.

Then I spent the next day writing my conference paper, and I've spent every day since then writing the new class I'm teaching that goes live on the 24th and doing conference admin. Did you know you have to individually enter each email address into Teams and cannot cut and paste as a block? *tears out hair*

I went shopping with a friend on Mother's Day and had to bail after a couple of hours because I felt wretched. Frankly, I still feel wretched.

Something has to change for next year. This spring was miserable. I was so depressed and unmotivated because I felt awful and tired that I procrastinated and that made everything so much worse. Never again. I have to stay on top of things because letting myself get behind quickly becomes unbearable.

/whining

2. I got cards from [personal profile] elfin and [personal profile] misbegotten. <3 <3

3. I have lots of exciting professional things coming up: this weekend is the conference of the organization I'm the president of. My presentation is on some ideas for combating teacher burnout. I think my summer class is going to be good; it's a junior seminar on poetry. It has to be American and British lit; I'm starting with 19th century and going to the present and looking at poetry through an ecocritical lens. I'm giving a paper at the Victorian Popular Fiction Association's conference in July on Ouida's use of birds in her novels and non-fiction essays. I've got a book review of Ungrading coming out soon. I've got a graduate class in teaching college English to write for fall deployment (super excited about teaching this!). And come July, I get to change all my stuff to Professor. Whooooo!

4. I've read a bunch of cool stuff recently. I shall post about it forthwith.
lunabee34: (star trek:  k&s smiling by whenisadoor)
1. I got the most amazing hand-drawn postcard from [personal profile] elfin!

2. Classes started back. Spoiler alert: I'm exhausted. LOL I'm doing that lovely thing where by the end of the day I feel feverish, like I have the flu. (No worries; I don't actually have a fever.) But I only have to be on campus two days a week this semester, and I'm hoping the work from home days will help mitigate the fatigue.

3. I'm not doing an end-of-the-year reflection post where I assess how I did on my 2022 goals and make some new ones for 2023. For the past several years, it's just been an accounting of how I only met one or two of my goals and did terribly on the rest, and that kind of post does not spark joy. I'm still reflecting on 2022 and making goals for 2023, I'm just doing it in my paper journal.

4. Thursday night, I went to see the Legally Blonde musical, and it was fantastic! It was an off-Broadway production, so the cast was phenomenal. I really enjoyed the way the show has been updated from the movie. Definitely recommend.

5. I gave up caffeine because I read that people with fatigue who are heavy caffeine users often create a crash effect that exacerbates their fatigue. I was drinking between two and four full-size Coke Zeroes in the morning + some black tea, so that seemed a reasonable possibility to me. I stopped caffeine on December 27 and have had no positive effects on fatigue. If anything I am more noticeably fatigued. Do y'all think it's been long enough that if giving up caffeine was going to magically make me less tired, it would have done so by now? Or do I need to give it some more time?
lunabee34: (yuletide: bird by liviapenn)
1. One of the people who comments in [community profile] journalsandplanners has banned me from commenting to them (accidentally, I hope, as I have never interacted with them outside the comm or inside the comm given the aforementioned), and I always forget that and type up a useless comment as I reply to every comment in all the posts to the comm like a good mod. LOL

2. In addition to upping the Synthroid, I upped my Topamax dose to 100mg at the beginning of this week. So I feel weird, anxious, and stupid--not to the degree that I did when I initially began taking the med, thank goodness. I've been on 75mg for at least a year now, maybe longer, so there have been no repeats of the interminable "I need a spoon. But no really I need a spoon. Did you have a spoon?" conversation, and I am not a danger to drive like I was during the original titration weeks. But I am, as they say, emotionally labile and panicky and I'm ready for this adjustment period to be over.

3. Yuletide comes along nicely. I always get the best recipients with the best ideas and prompts. I have never left the writing so late as I have this year; I generally like to have it in early, but I feel good about the story, and my goal is to get it uploaded today or tomorrow.

4. I am resigning myself to just not really having a break this winter. I had a meeting yesterday; I'm driving to one of our campuses today to give a presentation to the Foundation. I have to rewrite an online class and write a graduate internship (it's the pilot graduate internship for our department) for spring deployment. I'm just tired. Sigh.

5. I don't want to do the sign up for a specific day thing, but ask me a question (fannish or personal) or give me a topic on which to pontificate, and I will do so at some point. :)

We did it!

Dec. 7th, 2022 08:40 am
lunabee34: (Default)
1. Warnock has been elected our Senator! What a victory, and I'm very happy to have been part of it.

2. I have finished grading, turned in grades, and put the semester to bed. I also had a book review to turn in at the same time, so I was writing that simultaneously with grading (which was actually kinda nice; just as soon as I got disgusted with grading, I could switch gears to writing). I got the review finished and got good feedback from the editor and started making headway on my classes for the spring semester. I think I am now going to do nothing for a few days. LOL

3. Josh and I watched Everything Everwhere All at Once, and I can't recommend it highly enough. I have not watched many TV shows or movies since the pandemic, even ones I am interested in watching, so when I tell you that this is must-see, the praise is high. This movie really touched me emotionally. I spent the last third of it in tears. The acting is so good. The writing is so good. The message is so good. brief spoilers )

4. My endocrinologist has upped my thyroid meds, so crossing my fingers that will make a difference in my energy levels.

5. The Victorian Popular Fiction Association's Third Sex Reading Group read Night Brother this month, and it was a very interesting read. I enjoyed the book when I was reading it, but certain aspects of the novel fall apart on close analysis. None of us in the reading group could quite decide what Garland is trying to say about gender/sexuality.

The Night BrotherThe Night Brother by Rosie Garland

My rating: 4 of 5 stars


I really enjoyed this. It's such an intriguing premise--that Edie and Gnome share one body and fluidly shift from male to female. Add in the Edwardian setting, and I'm hooked.



View all my reviews
lunabee34: (Default)
1. The MRI is clear as I expected. Whew!

Getting it was not as smooth sailing as the sequence of three I had last year. I had this one with contrast, and the contrast dye hurt really badly. I'm talking excruciating pain at the injection site that migrated up my bicep. They do a bunch of imaging (like 45 minutes worth), pop you out, inject the dye, and immediately pop you back in for another 10 minutes of imaging to finish the procedure. So I had to be utterly still and keep my eyes closed while my arm was killing me. I was certain I was going to open my eyes and see that it had swollen up like five times regular size, but no. It looked totally normal. I didn't even get an injection bruise. But my arm hurt like a motherfucker all night and still felt weird the next day. I hope to avoid contrast dye in the future.

2. The trigeminal neuralgia pain had gotten really bad since my last neuro visit and then suddenly in the last week dissipated. We've got a plan to treat the pain if it flares again, but right now, I'm just very happy the pain is minimal. I don't want to take the drugs that are typically used to treat it because they make me tired and dopey, so hurray!

3. Emma's lumbar puncture is on Tuesday. *crossing all the fingers for some useful info*

4. Tuesday is also my pre-op appointment at the hospital; they'll run labs (got to make sure I'm not seekritly pregnant ha!) and explain the surgery. Because...

5. I can't have a needle aspirate biopsy. That would be too easy and inexpensive, my friends. LOL I get to have a surgical biopsy where they remove the whole lymph node under general anesthesia! That's happening on Friday (not tomorrow but Friday week). Then it'll take a week to run the pathology, and then I'll have some answers. I like the surgeon, and he agreed with me that I've got risk factors (dad's lymphoma, my autoimmune disorders, some symptoms (but the symptoms also overlap with autoimmune symptoms and aren't necessarily indicative in my case)), and that we need to just pop the sucker out and see what's what.

6. I am anxious. I do not want to have cancer. Which seems to me to be a completely valid and understandable sentiment. But also lymphoma has really good survival rates and treatment options. So I am trying to remain optimistic while also feeling like I need to throw up constantly. Also not super excited about having surgery. I've never had genuine surgery; the closest thing is having tubes in my ears almost 40 years ago when that was considered a real surgery that required an overnight stay in the hospital or like having my wisdom teeth out. Not fun, but not surgery really.

You know what is helping? Y'all. :) I got an amazing box of books from [personal profile] executrix that I have already begun devouring. Be on the lookout for a review post. And I got a card from [personal profile] elfin with amazing stickers: journal jewelry! And I got an amazing package from [personal profile] misbegotten: fountains pens and ink to geek out with!

I have been shit at commenting on everyone's journal and replying to your comments to me, but I'm reading your journals and taking joy in what you're posting and in the lovely things you're all saying to me. Thank you thank you, friendos.
lunabee34: (Default)
1. I got wonderful postcards from [personal profile] oracne and [personal profile] misbegotten! Thank you!

2. MRI scheduled for tonight at 8:30. It is wonderful that this facility is open after normal business hours and on the weekends, making it easy for people who can't take off work to schedule imaging. But, lordy, do I not want to drive an hour away in the dark to get this test done. LOL *cross your fingers for me*

Biopsy consult scheduled for the 31st. Who knows when the actual biospy will occur. No one is moving with any alacrity. I am annoyed (but let's be real; this is indeed my default state LOL).

Still haven't gotten Emma's lumbar puncture scheduled. Cymbalta seems to be having minimal effect on her pain levels. :( Back to the meds drawing board for her, I think.

3. Today is Fiona's last day of school! She won eleventy billion awards at Awards Day, including several state awards (for math and for writing; her entry to the RESA Writing Contest was a kickass poem about an owl). She was also the Outstanding Third Grade Musician. *preens in the reflected glory*

4. Peacemaker is a delightful show that you all should watch. It has many things going for it: it is short (this may actually be the #1 selling point for me), it has a diverse cast (people of color, women, queer characters), it manages to be really endearing and heartwarming. I mean, I don't understand how the show manages this last exactly; it's some kind of magic (okay, it's really excellent writing and a truly stellar cast). The characters are mostly terrible people, and the show deals with some super heavy themes, and it's incredibly violent, and yet I cried more times than I would care to admit (I care to admit no times), I am charmed by all the terrible people (except the villains, obviously--caveat, Todd the Wraith has a special place in my heart always), and this show is just damn awesome. John Cena is a fucking amazing actor, and I never thought I would be saying that, but damn. Also Danielle Brooks. And Eagley. :)

5. So many books!

Matrix (Groff), Victorian short stories, The Crime in Mind (Rodensky), Embracing Refuge (Janssen) )

Update

May. 17th, 2022 05:37 pm
lunabee34: (Default)
So, apparently I have a bunch of lymph nodes that are enlarged in addition to the one I'm worried about. This is apparently typical for Hashimoto's patients who often have enlarged lymph nodes clustered around their thyroid area. Apparently last semester when I had the very swollen and painful lymph node, a bunch of my other lymph nodes were also enlarged at that time, too, and the endo did not find any of that concerning.

The radiologist is likely going to just sign off on this ultrasound as fine as none of my lymph nodes appear abnormal (despite being enlarged). Apparently they only worry when the lymph node appears malformed.

But I'm not satisifed with that because this particular lymph node (and it is a lymph node that is measuring 7 mm) is outside the range of the lymph nodes that they typically see enlarged with Hashimoto's and it is also potentially indicating something more serious (what I didn't say before is that I'm worried about lymphoma and ovarian cancer). I didn't think of it until after I left, but I called them when I got home and asked them if they'll biopsy it. They do that in-house. It's possible the radiologist will recommend biopsying it anyway. I also called my obgyn and told the nurse all about it (and he's going to wait and review the radiology report), and if I need to, I'll go to my gp. But one way or the other I want to get this lymph node biopsied, and if all is well, then I will put this to rest and just know that my lymph nodes do this and I don't need need to freak out about it.

In other news, I've got Synthroid in hand and will take my first dose in the morning. I have high hopes for feeling better in a few weeks!

Thank you all for your well wishes. It was very cheering to read them throughout the day.
lunabee34: (Default)
My lab results from the endo came in; thyroid is finally fucked enough to start taking a low dose of Synthroid. I guess that's why I've been taking two and three naps a day for the last week (which if you know me, you know that I only nap under extreme duress) and hurting more and more. Pharmacy didn't have the low dose on hand; will get it in today, so I can start taking it tomorrow (must be taken first thing in the morning).

But the real joy is that over the weekend, one of my supra clavicular lymph nodes started swelling. I think. Maybe it's a knot. I certainly hope so because it's on the left side. Don't google it. I'm leaving in just a few minutes to get an ultrasound of the area. Prayers, well wishes, and all exhortations of the universe appreciated. I do not have time for this. I am writing a class that goes live on Monday, the conference I run happens on Thursday, and I am not interested in dealing with whatever the fuck this is.

Love y'all. Thank you in advance. Will update on my return.

well

May. 11th, 2022 05:16 pm
lunabee34: (Default)
1. I finally finished grading today. I gave a final on Monday at 8, had a meeting from 10:00-12:45, and then went to the endo (an hour away). Got up at 5:30 on Tuesday and graded until time to go to the neuro at 10:00. Emma and I had our appointments, got home at 3:00, and graded until bedtime. Got up at 5:00 today and graded until 9:30. But now the semester is put to rest!

2. Neuro agrees that it is trigeminal neuralgia almost certainly caused by the root canal. We're going to do an MRI just to be sure it's not caused by anything else like an MS lesion or whatever.

3. We all agree that we are going to aggressively pursue as many diagnostic avenues as possible for Emma, so she's having a lumbar puncture, and hopefully that'll give us some info. If not, we're going to do this new kind of skin punch nerve biopsy. *crosses fingers* She's had some improvement from the starter does of Cymbalta, so he upped her to 30mg. Back in a month. Friday, we see my GP who will start her on a low dose of statin for her bizarrely high cholesterol.

4. I am so tired. I have cried every night for the last week with stress and exhaustion. I am so glad the summer is here. I have got to get some genuine rest.
lunabee34: (Default)
1. So happy to have Emma home. She just got her grades, and she made all As! She was so worried about chemistry, but she pulled it off (she suspects with the application of a curve LOL).

2. Sammy goes to the vet for a biopsy this week. He has these scabby places on his head, and I've been saying they're weird for weeks now. When Josh took him to the vet ages ago for his sneezing, the vet looked at them but didn't think anything of them, but a couple of weeks ago, they migrated to his ears and now everyone agrees with me that they're a problem. No duh, everyone. They are not ringworm because we'd all be covered in ringworm LOL and they don't light up on the fungal UV light at the vet's, but he thinks they might be fungal, so we're gonna do a little biopsy. He has to be sedated, bless him.

I swear we had cats for forever, and I have not done as much stressing over them my whole life as I have over this one kitten in the last three months. LOL

3. I got a card from [personal profile] misbegotten: Don't worry; be purry! I'm trying, friend. :)

4. So much grading, OMG. But also so close to being done, thankfully. I decided to give audio feedback on final essays this semester, and I'm digging it.

5. Y'all, get this. I finally broke down and went to the dentist because I'm tired of my face hurting all the time, and he leans me back in the chair, and takes a peek, and then he looks at me really funny. Like really funny.

And he says, "I don't see any ulcers in your mouth."

And I'm all, "What do you mean you don't see any ulcers in my mouth?"

He says, very diplomatically as if speaking to his beloved aunt who now routinely sees pink elephants in tutus dancing across the room, "Well, I don't see any right now. Take a look," and hands me a mirror, and there aren't any ulcers in my mouth.

Now I know for a fact I have had ulcers in my mouth at least some of this time because I have felt them with my tongue and/or gotten out a flashlight and seen them in the mirror, but my mouth hurts pretty much all the time, so I've just assumed they've been there all the time. And they haven't.

"So why is my mouth hurting?"

"I think you have trigeminal neuralgia."

Oh, fuck my life. I'm going to see my neuro on Tuesday, and I'll float it by him. Maybe he'll want to do another MRI; he did suggest initially doing yearly MRIs. If I do have TN, it's presenting atypically, but I do think it's interesting that the dentist just offers this potential diagnosis that slots right into my autoimmune/neurological issues without knowing any of my medical history. He said the pain doesn't sound like TMJ to him because of where it is in my face, but I'm getting fitted for a mouthguard in a couple of weeks anyway because I do grind my teeth. OMG. Just whatever. LOL

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