I am no bird; and no net ensnares me
Feb. 9th, 2019 08:03 am![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
lunabee341. executrix gave me an awesome suggestion for my poetry writing: make one of those bingo cards that comms give out for fic writing. Does anybody know the code to make such a bingo card?
2. Josh had one of his stomach attacks and was out of work two days last week; the last episode was on the 11th. I am really concerned that these episodes are escalating. He's seeing his gastroenterologist on Tuesday, and hopefully he'll have some additional ideas, but we've been trying to figure this out for years to no avail.
3. I saw my endocrinologist on Wednesday. My previous endo retired since my last appointment (sob), but I like this new doctor. She is testing me for the Sjogren's antibodies, B12 and D levels, and thyroid. She went back through all the labs I've taken since I started going there, and she noticed that the one B12 test I'd taken in 2015 was 278. The normal range is 200-900, but she said that at under 500 people start to experience symptoms of deficiency. So I'm now taking sublingual B12. I have high hopes. She also wants me to take selenium. The only selenium in town contains wheat ingredients, so I'm waiting for some to arrive via Amazon.
4. Emma's foot quit hurting her. When we saw the physical therapist a few weeks ago, he suggested a shoe change (and suggested frequently changing brands, styles when time for new shoes). He also suggested two pairs of shoes, one for everyday and one for running/exercise, so we did that. She's been able to run again and is slowly escalating. So naturally, two days ago, the tendonitis in her arm flared up again. She is extremely angry and distraught. Fortunately her teachers have been kind and allowing her to mitigate the use of the arm.
Y'all, the longer this saga goes on, the more convinced I become that something is really wrong with her. Just as soon as one area stops being inflamed, another becomes so. And there's no precipitating event, often. She just starts hurting. I really hope that our March appointment with the rheumatologist will be fruitful. She's going to have to miss a whole day of school, and who knows how often they'll want us to come back. Hopefully they'll understand that we live really far away and work with us.
*sigh* It is really hard to watch your kiddo hurt and have to just sit on your hands and wait because you've exhausted all your options for now.
executrix gave me an awesome suggestion for my poetry writing: make one of those bingo cards that comms give out for fic writing. Does anybody know the code to make such a bingo card?2. Josh had one of his stomach attacks and was out of work two days last week; the last episode was on the 11th. I am really concerned that these episodes are escalating. He's seeing his gastroenterologist on Tuesday, and hopefully he'll have some additional ideas, but we've been trying to figure this out for years to no avail.
3. I saw my endocrinologist on Wednesday. My previous endo retired since my last appointment (sob), but I like this new doctor. She is testing me for the Sjogren's antibodies, B12 and D levels, and thyroid. She went back through all the labs I've taken since I started going there, and she noticed that the one B12 test I'd taken in 2015 was 278. The normal range is 200-900, but she said that at under 500 people start to experience symptoms of deficiency. So I'm now taking sublingual B12. I have high hopes. She also wants me to take selenium. The only selenium in town contains wheat ingredients, so I'm waiting for some to arrive via Amazon.
4. Emma's foot quit hurting her. When we saw the physical therapist a few weeks ago, he suggested a shoe change (and suggested frequently changing brands, styles when time for new shoes). He also suggested two pairs of shoes, one for everyday and one for running/exercise, so we did that. She's been able to run again and is slowly escalating. So naturally, two days ago, the tendonitis in her arm flared up again. She is extremely angry and distraught. Fortunately her teachers have been kind and allowing her to mitigate the use of the arm.
Y'all, the longer this saga goes on, the more convinced I become that something is really wrong with her. Just as soon as one area stops being inflamed, another becomes so. And there's no precipitating event, often. She just starts hurting. I really hope that our March appointment with the rheumatologist will be fruitful. She's going to have to miss a whole day of school, and who knows how often they'll want us to come back. Hopefully they'll understand that we live really far away and work with us.
*sigh* It is really hard to watch your kiddo hurt and have to just sit on your hands and wait because you've exhausted all your options for now.
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Date: 2019-02-09 03:36 pm (UTC)I just hate waiting. Three months of waiting to even start the process of helping your kid is way too long.
*hugs*
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Date: 2019-02-09 06:13 pm (UTC)http://an.owomoyela.net/fun/bingo_generator
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Date: 2019-02-09 07:06 pm (UTC)Also, let's be honest, doctors and especially specialists spend about 90% of a medical "visit" looking at computer screens so Dr. Bigshot Rheumatologist could perfectly well look at Emma's lab results when she's 300 miles away and Dr. BR is Skyping with Emma's pediatrician/internist/family practitioner, and then you and Emma can go discuss the results with the local MD.
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Date: 2019-02-09 08:06 pm (UTC)As you say, specialists, with some exceptions, don't really get too hands-on with patients in general (partially that may be a United States phenomenon, though). Having the paperwork, scans, et al. sent over and tele-consulting sounds doable given insurance coverage. Of course that in and by itself can be a huge challenge, but it doesn't have to be and is likely easier for you, Lorraine, to arrange, because helping others always works better than helping yourself -- plus, Emma's your child. ♥
(The chronic tendonitis is super-annoying; I remember it well. For me it only got bad in my twenties, though; my childhood and teenage years were mostly fine. In retrospect that's probably another reason my GI tract is so shot: NSAIDs on and off, and of course steroids are not meant to be used regularly either.)
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Date: 2019-02-10 02:56 am (UTC)Did you ever get any sense of what caused the chronic tendonitis?
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Date: 2019-02-10 02:55 am (UTC)However, what you are saying about what to do about subsequent visits totally apply: how much can we phone this, email this, call this in, Skype, etc.
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Date: 2019-02-09 08:13 pm (UTC)no subject
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Date: 2019-02-09 09:49 pm (UTC)I'm sorry about 2 and 4. I hope Emma and Josh both have positive visits with their respective doctors that yield some useful answers.
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Date: 2019-02-09 10:29 pm (UTC)Hugs hugs hugs
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Date: 2019-02-10 07:43 am (UTC)Sorry things are not so hot on the wellness front for you all. Hope you get some answers soon.
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Date: 2019-02-10 02:28 pm (UTC)Thank you, sweetie.